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August 15, 2005

Another Change of Plans

Sarah and I are now in Tucson and Andy went back to Scottsdale.  Last night Lara called and said that Noah is really missing Sarah and would I mind driving down and staying a couple of days.  You don't have to ask me twice if I'd like to spend time with Noah.  Sarah and I left this morning.  It took a little longer than it should have because of my keen sense of direction but we eventually made it.  At least we were here in time to greet Noah after he was discharged from the hospital.

Right now, Noah is doing amazingly and surprisingly well.  His energy is up and he's eating very well.  I had to make a run to the grocery store this evening to get a couple of special requests.  Cheetos and salsa?  I've learned not to question these requests anymore.  He had a hearty dinner before this as well.  His dietary requirements from now on are quite strict.  It has nothing to do with nutrition but rather with any possible contamination.  Anything raw is pretty much out in the vegetable  and fruit area.  It's like being in Mexico but even stricter.  Anything that he hasn't finished eating immediately has to be thrown away.  Meat has to be thawed in the refrigerator and completely cooked through. The list just goes on and on.

Tomorrow is a day off for him except for a visiting nurse will be coming by to instruct Lara on how to administer all of the various medications that will be required.  On Wednesday afternoon, he will begin having his stem cells infused.  I think that this is suppose to take about three hours or so.  Once again, Nurse Lara will be stepping up to the plate to see that all of the medical requirements are met.  Another very important aspect of his care will be both personal and environmental hygiene.  If we thought we should buy stock in Lysol  and Purell before, it's nothing compared to what it's going to be now.

So really that's all I know for now.  Nothing about future plans will  be known until he recovers from this stem cell rescue and all of the scans are done once again.  They are hoping that will give them a better perspective on how to proceed.

Keep praying because that's what is needed.  Thanks again for being so faithful to the website and I will let you know if there are yet any other changes.  But for now our sweet boy seems to be doing okay and let's hope that everything keeps going as such.

Much love,  Grandma

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August 15, 2005 | Permalink


Hi Noah, I am so glad to hear that you are doing well. You are so strong and brave. I think about you lots and hope you continue to get better and better. You are in our thoughts and prayers. I hope your treatment continues to go well so you have lots of energy to play. Love, Ryan Neill

Posted by: Ryan Neill | Aug 16, 2005 9:48:02 PM

Hey Noah..We are glad you are doing well. We know how it is to be away from your home and family and friends. It will be done before you know it and you'll be back to your own room. Keep up the great work and we are praying for you buddy. Gavin misses ya and me too.
Mashawn and Gavin

Posted by: Mashawn and Gavin | Aug 16, 2005 8:45:50 PM

Hey Buddy

Colin and I had such a great time at your house last week. We can't wait for you and Sarah to sleep over. We miss you now that you are in Tuscson.
I Love you!
Your best bud Curtis

Posted by: Francine Beck | Aug 16, 2005 2:43:43 PM

Hi Noah!

Boy are you awesome or what? You're doing such a great job with your treatments. We all miss you so much... especially Barrett. He keeps asking when he can see you again so you guys can play Lego Knights. I know it won't be for awhile but hopefully you'll fly thru your treatments and be home playing before you know it. Do you have any Lego Knights yet? I bet you could even put them together with a little help from mom and I know your mom would appreciate that after hours of assembling Bioncles and Star Wars Legos.

Keep up the good work buddy. We're thinking of you ALL and praying for you every day!

Lots of Love,
Chris, Tracy, Barrett & Payton

Posted by: The Allen's | Aug 16, 2005 1:28:28 PM


Posted by: Katie Hu | Aug 16, 2005 1:25:21 PM

Hi Noah,
I'm so glad that you are doing so well. I loved it when I read in your Grandma's update that you sent her to the store to buy Cheetos and salsa! That's one of my favorites too.
Have a good time playing with Sarah, I'm sure she has been missing you.
Thanks Grandma for the update, it is appreciated my many.
I love you Noah!
Grandma Ann

Posted by: Ann Kingsley | Aug 16, 2005 8:09:04 AM

Good going Noah! I look forward to reading about you in your Grandmothers journal especially when it's about how well you are doing. You are in my thoughts everyday and in my heart.
We all miss you here at La Casa.
Mrs. Mac

Posted by: Natalie McAtamney | Aug 16, 2005 7:10:11 AM

Yeah Noah,

We are so glad to hear you are feeling so good. You really are amazing! Thanks Grandma Kathy for the updates! We miss you! As always, you are in our thoughts and prayers all the time!

Love ya,
The Rileys

Posted by: Pam Riley | Aug 16, 2005 6:53:51 AM

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