Another Change of Plans

Sarah and I are now in Tucson and Andy went back to Scottsdale.  Last night Lara called and said that Noah is really missing Sarah and would I mind driving down and staying a couple of days.  You don't have to ask me twice if I'd like to spend time with Noah.  Sarah and I left this morning.  It took a little longer than it should have because of my keen sense of direction but we eventually made it.  At least we were here in time to greet Noah after he was discharged from the hospital.

Right now, Noah is doing amazingly and surprisingly well.  His energy is up and he's eating very well.  I had to make a run to the grocery store this evening to get a couple of special requests.  Cheetos and salsa?  I've learned not to question these requests anymore.  He had a hearty dinner before this as well.  His dietary requirements from now on are quite strict.  It has nothing to do with nutrition but rather with any possible contamination.  Anything raw is pretty much out in the vegetable  and fruit area.  It's like being in Mexico but even stricter.  Anything that he hasn't finished eating immediately has to be thrown away.  Meat has to be thawed in the refrigerator and completely cooked through. The list just goes on and on.

Tomorrow is a day off for him except for a visiting nurse will be coming by to instruct Lara on how to administer all of the various medications that will be required.  On Wednesday afternoon, he will begin having his stem cells infused.  I think that this is suppose to take about three hours or so.  Once again, Nurse Lara will be stepping up to the plate to see that all of the medical requirements are met.  Another very important aspect of his care will be both personal and environmental hygiene.  If we thought we should buy stock in Lysol  and Purell before, it's nothing compared to what it's going to be now.

So really that's all I know for now.  Nothing about future plans will  be known until he recovers from this stem cell rescue and all of the scans are done once again.  They are hoping that will give them a better perspective on how to proceed.

Keep praying because that's what is needed.  Thanks again for being so faithful to the website and I will let you know if there are yet any other changes.  But for now our sweet boy seems to be doing okay and let's hope that everything keeps going as such.

Much love,  Grandma

Leave us a message because we love to hear from you.