Another Good Day

The test results from a urine analysis that was done ten days ago to determine if there were any Neuroblastoma cells in Noah's body came back negative today.  Obviously this is really good news but the mystery of why the MIBG scan came back with something is still just that.  Lara asked Dr. Graham today what this all means and he said that he just keeps scratching his head.  The one possibility for the postive showing on the MIBG scan is that there is still a leision on Noah's leg that the isotope attached itself to and therefore there was no evidence of a tumor when the subsequent MRI test was done.  Hopefully we will know more when future scans are done after Noah recovers from this stem cell implant.

Noah went for his daily blood count tests today and they are dropping but haven't bottomed out yet.  Dr. Graham seems to think that he will need platelets by the weekend.  Sarah and I returned to Tucson this afternoon after she and her friend Payton went to meet their pre-school teachers.  It was really fun for Sarah. I especially enjoyed when Sarah picked up a toy iron in the play kitchen and asked what it was.  Trust me she hasn't spent enough time with me or she would know what it was.  I told her teachers that Sarah would be at school when she was in Scottsdale but I couldn't tell them when that might be.  It is so wonderful of Casa to be so understanding and allow Sarah to come to school only when she can.  We were talking to Noah this evening and he said that he too would like to go back in few months when he is feeling well enough to attend school.  Noah should be starting kindergarten this week but his birthday is in June so he won't be that much older than many in his class next year.  So, attending pre-school again for another year when he's feeling up to it should work out just fine.

I'm also happy to report that Noah no longer smells badly.  I guess that Sarah and I are lucky that we missed out on that special treat.  The smell according to Andy and Lara was really nasty. I had said last night that the odor was caused from the chemotherapy but Lara said that it's from a chemical that is added to the stem cells themselves and not from the chemotherapy.   Noah is still eating which is pretty unusual with his counts dropping but his mom is still willing to fix whatever it is he feels like eating.  The other good thing is that his itchy rash is disappearing so it must have been from the antibiotic as they suspected.

I would have to say that our little boy is doing much better than any of us expected.  It's just so great to be able to see him everyday and to see him look and behave like himself.  I know that he's going to lose his energy very soon but hopefully he will pick it up just as he has every other time.

That's it for now and I'll let you know how things go tomorrow.

Much love,  Grandma

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