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August 19, 2005

Another Good Day

The test results from a urine analysis that was done ten days ago to determine if there were any Neuroblastoma cells in Noah's body came back negative today.  Obviously this is really good news but the mystery of why the MIBG scan came back with something is still just that.  Lara asked Dr. Graham today what this all means and he said that he just keeps scratching his head.  The one possibility for the postive showing on the MIBG scan is that there is still a leision on Noah's leg that the isotope attached itself to and therefore there was no evidence of a tumor when the subsequent MRI test was done.  Hopefully we will know more when future scans are done after Noah recovers from this stem cell implant.

Noah went for his daily blood count tests today and they are dropping but haven't bottomed out yet.  Dr. Graham seems to think that he will need platelets by the weekend.  Sarah and I returned to Tucson this afternoon after she and her friend Payton went to meet their pre-school teachers.  It was really fun for Sarah. I especially enjoyed when Sarah picked up a toy iron in the play kitchen and asked what it was.  Trust me she hasn't spent enough time with me or she would know what it was.  I told her teachers that Sarah would be at school when she was in Scottsdale but I couldn't tell them when that might be.  It is so wonderful of Casa to be so understanding and allow Sarah to come to school only when she can.  We were talking to Noah this evening and he said that he too would like to go back in few months when he is feeling well enough to attend school.  Noah should be starting kindergarten this week but his birthday is in June so he won't be that much older than many in his class next year.  So, attending pre-school again for another year when he's feeling up to it should work out just fine.

I'm also happy to report that Noah no longer smells badly.  I guess that Sarah and I are lucky that we missed out on that special treat.  The smell according to Andy and Lara was really nasty. I had said last night that the odor was caused from the chemotherapy but Lara said that it's from a chemical that is added to the stem cells themselves and not from the chemotherapy.   Noah is still eating which is pretty unusual with his counts dropping but his mom is still willing to fix whatever it is he feels like eating.  The other good thing is that his itchy rash is disappearing so it must have been from the antibiotic as they suspected.

I would have to say that our little boy is doing much better than any of us expected.  It's just so great to be able to see him everyday and to see him look and behave like himself.  I know that he's going to lose his energy very soon but hopefully he will pick it up just as he has every other time.

That's it for now and I'll let you know how things go tomorrow.

Much love,  Grandma

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August 19, 2005 | Permalink


Hi Noah.

Just saying hi. Keeping you in my thoughts and prayers. Hope you had a good day.

Lots of Love,
Mrs. Rose

Posted by: Mrs. Rose | Aug 24, 2005 5:43:00 PM

Hey Noah!!
I was very lucky and got to meet your Grandma the other day when Sarah came to visit her preschool class. She is a very nice lady, but I'm sure you know that!!! Sarah was so cute at "her school". She will of course be happy to share with you when you come back! Her teachers are gonna love her, just like yours do!! Sounds like you are doing your part and staying stong. We'll continue to do our part, and keep praying for you. Deal? Deal!!!
Much love, Mrs. L

Posted by: Trish Langenhuizen | Aug 21, 2005 8:58:48 PM

Hi Noah and Family, Just wanted you to know that we are always thinking of you in Camarillo and sending you huge hugs! We love you, Mike and Claudia Bishop xoxoxo

Posted by: Claudia Bishop | Aug 20, 2005 5:25:44 AM

Hi Noah,
We're so happy to hear of your good news, thank God! Hope you have a great weekend and that you keep your appetite. You are a real trooper. Love, Hugs & prayers sent your way. William & family

Posted by: William & Lois Exley | Aug 19, 2005 10:29:15 PM

Hi Noah,

We are so glad to hear you are doing so well. You have been through so much we are just amazed by you. You are a very strong little boy. You and your family are in our thoughts everyday.

Kathy and Walter

Posted by: Kathy Applewhite | Aug 19, 2005 10:20:13 PM

Hey Noah -
Thank you for all the good news today. Here's hoping you and your family have a relaxing weekend.
Lizze, John, Will and Ava

Posted by: Lizze Slocum | Aug 19, 2005 3:35:07 PM

Hello to all,

Thanks again for the updates. I'm so glad to hear that Noah and family are doing well. Hope you have a nice weekend down in Tucson, at least it should be a bit cooler down there. Big hugs to all, I'm looking forward to seeing Noah's big smile in the near future.

Andrew's walking all over, his new favorite pastime is moving furniture (just call him Calvin Jr.)


Posted by: Kristine Kingsley | Aug 19, 2005 2:11:57 PM

Hi Noah,

We are glad to hear that you are doing well. You are so lucky to have a great family to help take care of you. Keep up the great work, you are such a trooper. Griffin and Grady miss you and want to see you whenever your're ready for visitors. We will be moving to our new house soon, hopefully next weekend!

We love you lots,
Stephanie, Glen, Griffin, and Grady

Posted by: Stephanie Sherwood | Aug 19, 2005 12:21:10 PM

Thank you for yet more wonderful news, Kathy. Noah and all of you are in our prayers.
Genesse and Bill

Posted by: Genesse Gentry | Aug 19, 2005 9:53:29 AM

What a great update!! Noah, you have made my day. I'm glad the nasty smell is gone and moreover that you seem to be doing so well - that is just fantastic news about the urinalysis!!! YAY for Noah!!

Thanks again to Grandma Kathy for the updates. Hope you all have a fabulous, relaxing weekend together.

Love, Sarah.

Posted by: Cousin Sarah | Aug 19, 2005 8:10:27 AM

Hey Little Man,

Glad to hear that you are doing so well... guess my birthday wish Wednesday night came true. :-)Wish you were there to help me blow out my candles because there were quite a few of them. Even though your counts will be dropping soon, I hope that you have enough energy to play with Sarah. Hope you have a good day tomorrow! MISS YOU AND YOUR FAMILY!!! Love, Kylie

Posted by: Kylie Haworth | Aug 19, 2005 1:18:34 AM

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