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August 13, 2005

Tucson Update

Noah is now half way through his intense chemotherapy and seems to be enduring it remarkably well.  The chemicals used this time shouldn't make him too sick but will take his blood counts down to almost nothing.  He's still able to eat and so that's always a good thing.  Yesterday afternoon was probably the worst so far in that he had a terrible headache.  Fortunately they were able to give him Tylenol and Benadryl and he finally went to sleep.  Today he was sitting up in bed and kept busy watching videos and playing video games.

The atmosphere in Tucson is much different than in Phoenix because it isn't a Children's Hospital and the children aren't allowed to play together or to socialize.  There isn't much of a playroom and no one seems to frequent it.  Another little Neuroblastoma patient last Fall requested that the Home version of the TV show Extreme Make Over redo the pediatric ward at the U of A Hospital.  The good news is that Disney came in and did a lot of sprucing up of the place.  Noah's room is decorated with a Buzz Lightyear theme.   Anyone who knew Noah when he was younger must remember how obsessed Noah was with Buzz for a very long time.  He has long since outgrown that as being something that he's interested in but it does seem rather appropriate.

The one thing that Noah was happy about is that he has access to a Play Station II which is a dream come true for him.  Lara can't believe the difference in nurse to patient ratio.  The nurse in Tucson is only responsible for two patients.  A far cry from the overworked nurses at Phoenix Children's.  The other nice thing is that the rooms are private rooms and Noah and whichever parent is staying with him aren't awakened in the night by having a roommate who might not be on the same sleeping schedule.  The other nice thing is that there is a cot rather than a chair for the parent to sleep.

We still have no news about any of the conflicting scans because it is the weekend and Lara hasn't heard from Dr. Graham. She hopes that she will hear something from him on Monday. She isn't sure how long the stay will be in Tucson.  It will be somewhere between ten days to three weeks.  So,  I haven't anything too much to report other than so far Noah is fairing pretty well considering the circumstances.  Grampa and Grandma Georgia are going down tomorrow and so maybe they will have something more to report when they get back.  It's hard to have a grasp as to what's going on when we're communicating by phone.

That's the latest and I'll let you know about anything else of interest that I hear about in the near future.

Much love,  Grandma

Please leave a message because you know how much we love to hear from you especially when Noah is in the hospital

August 13, 2005 | Permalink


Sending a Tinkerbell kiss your way,

Love Viks

Posted by: viks | Aug 16, 2005 9:07:17 PM

Nelson Family-

Keep the faith and positive attitudes. Sending prayers your way for continued strength and patience. Giving thanks to God for clean MRI.

Averitte Family

Posted by: Monica Averitte | Aug 15, 2005 9:12:35 PM

Way to go, Noah...still eating and doing well with this latest treatment!! I was thinking about you all weekend so I was very excited to read Grandma Kathy's news this morning. Tell your mom and dad I'm so happy they have a real bed (well, almost)in your room. It reminded me of New Year's Eve of 2002...I spent the night with Karen in Jed's room as we awaited his open heart surgery. A friend smuggled in a little bottle of champagne and a tiny bottle of Bailey's for our coffee as well as party hats and blowers. The nurses somehow looked the other way. I hope their stay with you in your room has some up times too! And especially I hope your treatment brings you the results we are all praying for...all the time. Keep up your great work, Buddy, we're so very proud of you!! Lots of love, Aunt Kathie and Uncle Jerry xoxo

Posted by: Kathie Allen | Aug 15, 2005 12:35:10 PM

You are such a brave and tough kid. I donated some blood this week and tried to think lots of NB-fighting thoughts. That way if you get any of my blood, maybe it will be ready to do battle in your body. I wish I could help you more.

Take care,
Sarah Jacobson

Posted by: The Jacobsons | Aug 15, 2005 7:34:51 AM

Greetings Noah!! So glad to hear that your therapy in Tucson is going along as well as to be expected!! I just know that with all of your hard work and patience, this will all be behind you soon enough!!

I'm supposed to tell you a joke from Travis:

Q: What did the egg say to the clown?
A: You really crack me up!!!

Don't forget..you have some friends here in Chitown who think about you and pray for you every day!! Keep up the good work!!

Love, The Newgrens

Posted by: misha newgren | Aug 15, 2005 5:45:54 AM

Hi Noah,
We're glad you have your playstation & parents there with you. We'll continue to pray for you & your family. Take care you brave little man.
Love, The Exleys

Posted by: William & Lois Exley | Aug 14, 2005 11:04:05 PM

Hey Noah,

Thank you Grandma Kathy for the update. As always, we have been thinking of you. Hey, TJ has lots of PS 2 games- we would be happy to send some with the next visitor if you would like! Stay strong little man, you rock!! As always, you are in our thoughts and prayers ALL THE TIME!!

Love ya,
The Rileys

Posted by: Pam Riley | Aug 14, 2005 6:22:21 PM

Hi Grandma Kathy,

Thank you so much for the update. I am always thinking of Lara, Andy and Noah and it is great just to get even the minor details. Hope to see you soon.


Posted by: Kristine Kingsley | Aug 14, 2005 3:36:06 PM

Hi Noah and family. As a Uof A graduate, I wish you were in Tucson for something more fun like a Cats basketball game. Maybe next time! Just wanted to send you a note from Colorado. We mailed you a package to Scottsdale from Vail. Maybe someone can bring it down for you to open. I know they'll take good care of you at the Uof A hospital. We think about you and your family all the time and keep you in our prayers. Hang in there buddy! Sending you smiles --- The Fables

Posted by: The Fable Family | Aug 14, 2005 1:59:17 PM

Hi Noah,

It's me Gigi and I wanted to tell you that I hope you feel better. Jake thinks it is really cool that you can play PlayStation 2....what's your favorite game????
I really love looking at ALL your pictures...especially the ones from your B'Day...
Take cate Noah!!!!

Love Gigi

Posted by: The Ernst Family | Aug 14, 2005 11:38:38 AM

Hi Noah i am glad that you have good care going on there in Tucson .Sorry about your headache hope no more of them, i enjoy reading your website and i visit it often to checkup on you. Take care little guy and i will keep praying for you and your family.Amiee (Gavin Brunin's Aunt)

Posted by: Amiee | Aug 14, 2005 10:58:06 AM

Hey noah i just wanted to know how you were doing. I just wanted you to know that I have praying for you. You don't know who I am though, I am one of Kylee's friends who has been keeping me updated on how you are. I am so glad she finally gave me your website! Well talk to ya later!


P.S. I will keep you in my prayers

Posted by: keith matthews | Aug 14, 2005 8:33:26 AM

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